I am a senior neonatal nurse with over 25 years experience and the Pan London Lead Nurse for Neonatal Palliative Care, the first regional post of its kind, jointly funded by the True Colours Trust and Chelsea & Westminster Health Charity. This is a unique post developing the training and education of staff across the London region. I have been instrumental in developing national and international guidelines, including robust complex and palliative care pathways.
For the last nine years, I have helped develop and organise the National Neonatal Palliative and End of Life Care conference in collaboration with Child Bereavement UK (CBUK) and I am a facilitator for CBUK’s national educational workshops countrywide.
Building on my educational work over previous years, I continue to raise awareness on neonatal palliative care, by educating professionals across the UK in a variety of settings, and strengthening working relationships with local specialist palliative care services including children’s hospices. I am an invited guest lecturer at Kings College, London South Bank, Greenwich and Kingston Universities, teaching Neonatal Palliative and End of Life Care on postgraduate courses.
I recently took the position of representing the NNA (Neonatal Nurses Association) and BAPM at the National Organ Donation Committee (NODC).
I am also the Lead Editor for the ‘Nurses Textbook in Neonatal Palliative Care’, the first UK textbook of it’s kind, due for publication early 2019.
Mancini A (2017) Neonatal palliative care: Together we can optimise support for infants and their families to live life. Editorial Journal of Neonatal Nursing (2017) 23, 47-48
Uthaya S, Mancini A, Beardsley C, Wood D, Modi N (2017) Chapter in La demarche palliative en medicine perinatal
Uthaya S, Mancini A, Beardsley C, Wood D, Ranmal R and Modi N (2014) Managing palliation in the neonatal unit. Published online: Arch Dis Child Fetal Neonatal ed 2014. 5th June 2014.
Mancini A, Uthaya S, Beardsley C, Wood D and Modi N (2014) Practical guidance for the management of palliative care on neonatal units. Royal College of Paediatric and Child Health & Chelsea & Westminster NHS Foundation Trust.1st Edition. London
Craig, F and Mancini, A (2013) Can we truly offer a choice in place of death in neonatal palliative care? Seminars in Fetal and Neonatal Medicine,Vol 18,2: 93-98
Twamley,K ,Kelly,P Moss,R Mancini,A Craig,F Koh,M Polonsky,R Bluebond-Langner,M (2012) Palliative care education in neonatal units: impact on knowledge and attitudes BMJ Supportive & Palliative Care 2012;00:1-